Palliative care policy must place customer voices centre and front, researchers state

Palliative care policy must place customer voices centre and front, researchers state

ABC Wellness & Well-being

By wellness reporter Olivia Willis

Palliative care identifies and treats symptoms, which can be real, psychological, religious or social.

Getty Photos: Hero Graphics

It absolutely wasn’t through to the final hours of Sue McKeough’s life that her spouse Alan Bevan surely could find her end-of-life care.

Sue had dropped into a coma days prior, but Mr Bevan, 68, felt he had been the only person responsible for their spouse’s care.

„as much as that time, there were no professionals there. It seemed for her,” he said that it was just me caring.

„we clearly knew that she ended up being gravely sick, but I wasn’t completely certain just what the prognosis had been.”

Sue had been identified as having Alzheimer’s condition disease at 49 and passed away simply 5 years later on in a medical house.

„we had thought that in a first-world country like Australia, there is palliative care solutions available,” Mr Bevan stated.

„But in my opinion, which wasn’t the way it is.”

A palliative care specialist — someone who has expertise in providing comfort to people at the end of life — until her last day despite attempts through Sue’s nursing home and GP, Mr Bevan wasn’t able to find his wife.

„I’d promised … that i might hold her hand to your really end,” he said.

„l had done that through some pretty tough stuff. However in those final little while, we felt I becamen’t in a position to offer the degree of care that she required that she needed, nor was I able to get her the care.

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